-Sis Terry A.
WHAT IS LUPUS?
How can you support your body when your body’s immune system turns against itself? Let’s explore my journey, as I am bravely battling Lupus for more than 3 years now, a chronic autoimmune disease that affects multiple organs and systems. Lupus, also known as Systemic Lupus Erythematosus (SLE), involves the immune system mistakenly attacking healthy tissues, leading to inflammation and damage. Though it may be a rare condition, it’s important to raise awareness and understand the experiences of those living with it.
Lupus warriors are known as “The Purple Butterflies.
My colleagues, known me for having a strong work ethic and unwavering dedication. I faced numerous challenges to maintain my college scholarships, pouring my best efforts into my education. Pursuing a nursing degree was no easy task, but I managed to graduate on time and successfully passed the board exams with the grace of God (Thank you, Lord!) Being a naturally competitive person, I aspired to support my family. However, due to limited nursing opportunities at the time, I decided to explore other paths. My career in the BPO (Business Process Outsourcing) industry took off, and I achieved remarkable success. I received numerous awards, had the privilege of traveling to Australia on three all-expenses-paid trips, and even took charge of teams. I believed that these opportunities were gifts from God, and I was determined not to let them go to waste.
A SERIES OF TESTS
Driven by my determination to excel, I persisted in pushing myself to the limit, disregarding the warning signs and neglecting my deteriorating health. I convinced myself that youth and strength would shield me from any harm, unaware of the brewing rebellion within my own immune system. Unfortunately, my immune cells turned against me, leading to the onset of Lupus—a condition triggered by stress, even though its exact cause remains unknown. This revelation offers a plausible explanation for why I succumbed to this disease.
Detecting Lupus poses a challenge not only due to its rarity, but also because its manifestations often overlap with symptoms of other illnesses. In my case, I experienced early signs such as the presence of multiple carbuncles, episodes of vertigo, and stiffness of my body. However, it was when my right arm became as rigid as a rock that a sense of urgency arose. She underwent numerous check-ups, had various tests, tried different medications, and explored alternative therapies, but none provided satisfactory results. Eventually, I was referred to Dr. Andrei Rhoneil Rodriguez, a Rheumatologist at Makati Medical Center, who would play a crucial role in my journey.
FLARES
Upon hearing the possibility of having Lupus from my doctor, my anxiety heightened, as I possessed knowledge about the illness due to my background in the medical field. Unfortunately, my anxiety escalated further when subsequent tests confirmed the diagnosis. Alongside the physical discomfort of enduring numerous blood tests and the financial burden associated with them, I also experienced the distressing effects of disease flares.
“Lupus flares” are the term used to describe the attacks or episodes of increased disease activity in Lupus patients. These flares can vary in their presentation and intensity from one patient to another. As for me, my flares were characterized by a burning sensation in my skin and a tightening of my nerves.
I encountered two particularly challenging flare incidents while on the road. The first occurred while I was crossing the street after work. As my flare intensified, I found myself unable to continue moving, causing me to stop in the pedestrian line. With the traffic light turning green, cars began buzzing around me, but I had no one to accompany me during that distressing moment.
RIGHT ON TIME
The second incident occurred when my body abruptly froze, causing me to fall and fracture my left elbow. However, the most formidable challenge came while I was sleeping. My left side stiffened, and I felt as though my heart had hardened for a duration of nearly five minutes. These experiences highlight the difficulties and unpredictable nature of Lupus flares, which can have a significant impact on my daily life and overall well-being.
I was attending The Feast Salcedo when I was diagnosed with Lupus. The timing seemed improbable, but for someone like me, life took an unexpected turn as I deepened my connection with God. Initially, depression weighed heavily on me, but I transformed my pain into inspiration, channeling my emotions into creating poems, songs, and testimonial posts on Facebook. In this process, I came to realize that while a cure for Lupus may not exist yet, she could at least raise awareness about the condition. In my own poignant words, I proclaimed, “Lord, allow me to become the Hope of Lupus warriors”.
FOR YOU, LORD!
Since then, I have been actively sharing my personal experiences, always attributing the glory to God. To my surprise, I began receiving messages from silent warriors, expressing gratitude for my efforts in raising awareness about Lupus. Others reached out to thank me for providing hope and courage in facing my own life’s challenges. In these interactions, I discovered my purpose—to be a beacon of hope for Lupus warriors, having experienced the journey myself.
Attending The Feast has brought about a profound transformation in my life. It has not only enlightened me about the miracles of Christ, but also offered me a renewed outlook on life. Recognizing my previous focus on striving to please my employers and achieve impressive results, I began contemplating how I could bring joy to God’s heart instead. With heartfelt prayers, I humbly sought guidance, asking, “Lord, how can I bring a smile to your face?” This sincere query reveals my deep longing to align my actions and priorities with God’s divine will, aiming to bring Him genuine joy and honor through my choices and endeavors.
Inspired by my newfound perspective, I embraced another opportunity to join The Feast Antipolo Events and Media team.
THERE’S HOPE!
Currently, I remain committed to taking my lifelong medications to manage my condition. Physically, I made progress, although I bear the marks of burns on my skin and experiences skin alopecia. Yet, what truly garners admiration from others is my unwavering determination to work and earn a living despite my health challenges. I attribute my resilience to my steadfast belief that God is the ultimate source of everything, and with His strength, I was able to persevere.
Even though Lupus patients are classified as persons with disabilities (PWD), it is crucial not to solely rely on other people. I find solace and guidance in a Bible verse that resonates deeply with me, Psalm 37:4, which encourages delighting in the Lord as a means of receiving the desires of one’s heart. This verse serves as a constant reminder to finding joy and fulfillment in my relationship with God, trusting that He will provide for my needs.
Yes, there’s hope for us, and God has bestowed upon each of us unique talents and abilities, meant to be utilized for His glory.